So its true, I am in remission. The CT scan showed nothing there, the blood I had taken before the last lot of chemotherapy showed normal tumour markers and everything can gradually return to normal.
Except things are not normal. As I mentioned before there is the paranoia that I am carrying the faultyy gene and so could be rediagnosed at any time.
Then there is the bowel stuff. I have not known anything like it - I can veer from blocked to loose in the course of a day.
I addressed this with the consultant yesterday. Although I have asked my surgeon & my oncologist several times if there is anything I should be avoiding or including in my diet the answers have always been there is nothing you should cut out.
Speaking to the consultant yesterday and discussing (like an adult without being embarassed or sniggering) she suggested that it might be worth cutting out 'healthy food'. So things that you eat because they are good for you like muesli, wholemeal bread & pasta, and seeds and pulses should be cut out to see if it has an impact on your regularity.
Now I have already reduced my caffeine intake. Every 3 to 4 weeks I think 'oh I really want a coffee, it can't be that bad' and then my stomach & intestines remind me why I am cutting it out (Decaff has the same effect). Funny enough I can drink tea though.
So once the current muesli packet is finished I shall be looking for a new breakfast cereal.
About this Blog
This blog started as an online diary and place for me to rant about annoyances in my family.
However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.
On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.
October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.
It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.
It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.
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A celebratory day indeed. I do hope bowel 'things' return to normal.
ReplyDeleteBW,
Lesley x.