About this Blog

This blog started as an online diary and place for me to rant about annoyances in my family.

However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.

On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.

October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.

It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.

It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.

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Thursday, 17 April 2014

School admissions

Yep, it's that time if year when nervous parents all over the country are finding out whether their children gave got into reception at their preferred school.
Some are disappointed as they did not get their preferred or catchment schools, some have the terrifying prospect of 2 school runs for 2 different children.
Some like me, still don't know. All West Sussex county council can tell me is 'check your junk folder' or 'wait til 3pm'.

I am a digital junkie, I was checking my junk folder every hour with my normal email and frankly waiting til 3pm is not acceptable. Surely with her name and date of birth, plus first preference, they can check whether the email was sent & whether I made a typo in my email address. But no, waiting is my option. 

And what about the fact that I have to do this again next year for Isaacs junior school place, & in 2017/18 for Imogen's junior school place & Hope's reception place. 

And then again for senior school, then there will be UCAS applications, job applications. It's a never ending cycle of applying online or paper. When will the process improve?

Thursday, 10 April 2014

a quick update

This is just a quick update about chemo and treatment generally.

My FB and twitter followers will be aware that round 4 was really quite rough. I started vomiting while the oxaliplatin was being infused and managed to fill 4 bowls (thats about 4 litres) and kept vomiting like the other three times. 

What was different this time was despite taking all the anti nausea medication, the nausea did not go away. I have felt like death warmed up for the last two weeks. I was sick a couple of times as well. Proper gut wrenching vomit, which gave me back spasms and left me in an immense amount of pain as well as wondering what the hell was going on.

It got to the point where I was dreading yesterday as I didn't think I could put my body through another two cycles. 

To cut to the point. I didn't have too. I still spent the same amount of time at St Lukes yesterday, but I was deemed to ill to have another bout of chemo and so yet again it comes to an end before the natural conclusion. 

We are off to Somerset shortly and I will update further on why I was not able to have chemo yesterday.