About this Blog

This blog started as an online diary and place for me to rant about annoyances in my family.

However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.

On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.

October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.

It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.

It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.

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Showing posts with label infant school. Show all posts
Showing posts with label infant school. Show all posts

Thursday, 17 April 2014

School admissions

Yep, it's that time if year when nervous parents all over the country are finding out whether their children gave got into reception at their preferred school.
Some are disappointed as they did not get their preferred or catchment schools, some have the terrifying prospect of 2 school runs for 2 different children.
Some like me, still don't know. All West Sussex county council can tell me is 'check your junk folder' or 'wait til 3pm'.

I am a digital junkie, I was checking my junk folder every hour with my normal email and frankly waiting til 3pm is not acceptable. Surely with her name and date of birth, plus first preference, they can check whether the email was sent & whether I made a typo in my email address. But no, waiting is my option. 

And what about the fact that I have to do this again next year for Isaacs junior school place, & in 2017/18 for Imogen's junior school place & Hope's reception place. 

And then again for senior school, then there will be UCAS applications, job applications. It's a never ending cycle of applying online or paper. When will the process improve?

Monday, 10 September 2012

Warning, May contain irrational ranting (mostly about school uniform)

This week marks what should be one of the most exciting events in Isaac's short life. On Wednesday he starts infant school.
I should be preparing by ironing/sticking/sewing on name labels and fretting about lunch boxes.
Instead I am doing battle with yourschooluniform.com.

Following parents evening back in July we were informed that we had to order the school logo'd sweatshirts/cardigans from the above mentioned website. There were non available from the school (or if there were then they were limited sizes) and the school do not run a second hand uniform shop.

I finally ordered the sweatshirts at the start of August when funds permitted. The confirmation email confirmed the sweatshirts would be delivered within 21 - 28 days. Fine, I though that still gives me a week before Isaac starts school. They'll be here in time.

So we waited, 21 days came and went. I logged onto my online account to find out that they were still in production. No problem as long as they are dispatched within 28 days they'll be here. 28 days came and a card for a parcel through the door. Oh good I thought the jumpers are here.

Imagine my disappointment (& horror) when the parcel was not school jumpers but more NCT things, which I do not need nor want & am not entirely sure why I am being sent other than being the treasurer or toddler group coordinator.

So straight away I log on and see 'In Production'. Sorry, still in production, no surely some mistake the email says delivery within 28 days this is day 30 surely there is a computer glitch.

So I trawl their website looking for a phone number - 22 minutes on hold later - while being told by the annoying american autovoice 'Your call is important, the queuing time is one minute' I get through to a real person.

No, its not a mistake my sons jumpers for his only first day at school are still being embroidered due to a delay with their supplier. 

I start off quite rationally:

  •  Why have I not been emailed to tell me there is a delay?
  • Why is there nothing on your system to tell me that there is a delay with my order
  • More importantly what are you going to do to make sure that I have a jumper for my sons first day at school?
Well, she says, It's not our fault it's the suppliers. No not really. You can email/put a message on affected accounts/make sure your paying customers know that they might not get their orders on time.

I realise that I'm not going to get anywhere here, so ask for a manager to call me back. I have worked in enough call centres & customer facing roles to know that you can't get anywhere speaking to a call centre operative you have to go to the top.

So later on Ray calls me, he is the area manager for the account. He understands, the school know about the problem and are aware children might not be in correct uniform, he will contact the warehouse and find out the exact situation with the orders. Here is his mobile number, I can call him on Monday and he'll be able to let me know what the situation will be.

So I spend a pleasant weekend. It's our 10th wedding anniversary, so we have a family meal, and a long lie in on Sunday and I prepare myself for battle on Monday.

I give him the morning to find out what is going on. I also have a look in Sainsburys to see if I could buy a plain one. This will be a problem as the school has chosen Maroon which is not stocked by Sainsburys & my stubborn streak tells me I shouldn't have to buy a plain one when I ordered my 3 logo'd ones.

Come lunch time I give him a call & voicemail, so I leave a message. Still no contact so another call and another voicemail. 

I'm getting quite cross now, come 4.30 and still no call I call him again. This time he picks up. I am not determined to be awkward, but I haven't thought to get my order number to hand, I am trying to cook tea for the children and they are playing happily on the iPad where the email is easy to access.

He isn't so friendly this time. The 'system' says that the jumpers will be dispatched early in the week. Have they been sent today I ask? No he says. Well then they are not going to be here in time then are they. 

He then brings out the 'have you spoken to the school'

Well, technically I haven't, but I'm not going to let on. I have friends who have told me that the school have no uniform to sell. It has to be bought from yourschooluniform.com

The school told us in July that they didn't hold the uniform in stock. I have no reason to believe that this would have changed. 

Then 'Have I looked into getting a plain one' Actually Ray, I have and they don't stock them & why should I have to buy another jumper when I ordered 3 from you to be delivered in time for school to start.

Then my gem & final piece

I only get to experience my sons first day at school once and you are robbing me of the chance to remember it

Really all I want is one jumper for Wednesday, I don't need all three. 

So I tell him, I want you to arrange for a jumper (don't actually mind whether it is logo'd or plain) to be couriered to me tomorrow so that Isaac has a jumper to wear to school on Wednesday.

I told him I use social media and blog and that I would be writing about this.

So loyal readers I shall let you know what happens tomorrow when I call him

Friday, 20 July 2012

Cancer, one year on

Ok, so not strictly one year on as I didn't get the final diagnosis til 3rd August.
But never the less this last week has been really hard for me. I have been coming to terms with the fact that this time last year we knew there was something wrong but not what. In the last year I have undergone 8 hellish cycles of chemotherapy, been told that potentially I might not be able to have any more children and have lived with the very, very real fear that this might come back. 


It is certainly easy to say think positive but I defy even the most positive of people to not have their down days. This week has been a down week. 


There have been some lovely memories made this week. The olympic torch arrived in Crawley and we headed down to see that. A friend actually got to carry the torch in East Grinstead and Tony managed to get his hands on it too. It has also been Isaac's last week at pre school. 


Now that is quite significant for me. In my downest moments last summer I occasionally thought that I wouldn't get to see him start pre school, let alone graduate. But I did, I fought the cancer and saw my brave little boy graduate from pre school, and now we have the next big adventure, Infant School. He is so excited about the new challenges and adventures ahead and so am I. I am entering the world of lost jumpers, reading books, homework and lunch boxes. On top of all of that I am so proud of the way that he has coped over the last year. I don't know if the children understood how significantly ill mummy was, but I do know that last summer was probably a bit of a let down for them.


So this year we are going to have the summer of our lives. 


Tomorrow we are off to Scout Camp for a week, then there will be at least one trip on the Bluebell Railway, the Tulleys Farm Maize Maze, hopefully some picnics with some very good friends who have supported me massively over the last year. Then there are 2 massively significant events. 


Beautiful days Number 10. Last year it was all I kept asking my surgeon 'Can I go, Can I go?' So we went, it was hard work but I felt normal. This year will be awesome. I am planning heart bunting, heart t shirts and a fab menu.


Then there is Jo's Jump for Beating Bowel Cancer. If you haven't sponsored her yet, I urge you too. I will be there, albeit on the ground cheering, taking photos and generally being there for her as she has been there for me over the last year.


Beating Bowel Cancer have been a huge support to me and continue to support me even now and every penny raised goes towards raising awareness of this disease.