About this Blog

This blog started as an online diary and place for me to rant about annoyances in my family.

However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.

On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.

October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.

It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.

It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.

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Monday, 20 October 2014

A Bitter-sweet Symphony

A bit of a different post, apologies for the rant:

I must say that sometime I lack tact and talk over others.  This is at work and with friends.  It has been highlighted to me in my recent peer review feedback and is something that I am working on. Another thing I am working on is comments I make socially and on social media and the impact of those comments.  

I post a lot on Facebook, some are on how the kids are growing up, some are me just being me and a bit silly and others are requests for help with the challenge of looking after 3 kids on my own.  I have a life too.  Some people seem to think that I should be sat in the house every evening, even if the kids are asleep in their own beds.  

The "mums" have been great in helping me keep on Scouting.  Ruth would be distraught if I had of stopped it as she was when she had to stop Guiding due to her failing health.  Since September, 6 different people have helped me out on that front, thanks, Debbie, Nicola, Rob, Vicky, Emma & Lex.

I have joined a support group, again I see this as a positive thing.  All of the people I have met and spoken to via this have got kids, most work too.  The only time that like minded people can meet is therefore evenings and weekends.  To cover these, I have decided that I cannot use goodwill and am happily employing the services of a babysitter.  Unfortunately, someone has made the comment that they feel I should be staying at home with the kids.  Am I being unreasonable to ask to be out of the house 3 nights every fortnight for some stimulating adult company and conversation?  

I rely on MY mums (Geraldine & Barbara) a lot for support with childcare; which they do without any question.  Barbara (and Martin) are having the kids for the half term week.  This is giving me the opportunity to redo my bedroom, renewing furniture that is nearly 10 years old.  I am also getting the time to visit friends and go walking in Wales.  

I also got two things through the post today.  St Catherine's Hospice hold an annual remembrance service for loved ones in December, something I shall do with the kids.  The other was an email from MacMillan.  They are looking to become the charity of the year for Argos & Homebase's parent company Home Retail Group.  If you work for them, please vote and if you know anyone who does work for them, please mention it to them and make sure that they use their voice.

It is strange, I am sat here, 20 days since my last alcoholic drink and for the first time in 20 days I have not got the need to have a drink; please don't misunderstand this, I am not going sober all of the time!  I am looking forward to seeing friends on the 1st & 2nd November and having a beer (or two) with them.  

If anyone would like to donate to MacMillan they can do so (shameless plug coming) via my GoSober profile, or my good friend Rob Pullinger who suggested I did it!

Until next time.  Best of health and luck.


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