About this Blog
This blog started as an online diary and place for me to rant about annoyances in my family.
However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.
On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.
October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.
It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.
It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.
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Thursday, 19 January 2012
Drawing a (PICC) line under it
Sorry about that, I just need to let you all know that I have my arm back. So, on Wednesday I drove across to Guildford because I knew I would not be having any 'proxy oxy' as defined on many bowel cancer forums. On speaking to my oncologist it spears that i was given a higher dose/regieme than is normally used. I should have questioned this but didn't think about it at the time. I think I will in next time, if I remember!! Then he said those amazing words 'i think that your PICC can come out' This means that tomorrow morning I can have a shower and not wrap my arm in cling film. Although this is a useful skill I have acquired over the last 5 months I can't see it being something I will advertise on my cv! If you think it sounds easy I urge you to try and wrap your own bicep in cling film one evening and let me know how it goes. So the PICC is out, the skin is very dry and shares in palmers cocoa butter are going to go sky high as this is the only thing that tackles my really dry skin. I have also started thinking about the direction of this blog once the chemo has finished. I hope you will still stay with me because I think I may start boring you with some of my craftyness. There will be pictures, rants about difficult patterns and hopefully some finishing of long term UFO (unfinished objects) and an update on my WIP (work in progress). I shall tell you about what I have OTN or OTH (on the needles or on the hooks) and show you my wishlists of projects. My first UFO I really want to finish are the bobble cushions I started when Imogen was 6 weeks old. I can't find a link at the moment but will make sure i do before long.