About this Blog

This blog started as an online diary and place for me to rant about annoyances in my family.

However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.

On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.

October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.

It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.

It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.

For more inane ramblings, follow me on twitter

To see my crafty loves follow me on Pinterest
Follow Me on Pinterest

Why not like my new Facebook page
http://www.facebook.com/thepoohstickqueen" data-layout="standard" data-action="like" data-show-faces="true" data-share="true">

Or follow my photographic craziness on instragram
Instagram

Sunday, 25 September 2011

Whoops, I missed....

recording the start of spooks on BBC One :( 


I have been extra busy this week. & if not thats what it feels like.


Cancer & it subsequent treatment does not just effect you. It effects everyone.


This week I rang to make the appointment to get my PICC line inserted (4th October)


In with the confirmation letter for that was the date of my first treatment (5th October).


Alongside all of that I had arranged a flu jab for 6th October as well as the preschool cake sale.


So I have spent the week trying to arrange things for my children. 


To have the PICC line inserted I have to be in Guildford for 10am. This means that I need to leave home by 08.15am at the latest. This, in turn, means that Tony has to be home from work by 8am so I can check traffic, petrol & probably move car seats. He in turn has to drop Isaac at the childminders at 09.30 and then look after Imogen until I get home. 


On the Wednesday Isaac has preschool form 09.30 - 12.30, my appointment is at 11am & I know that that is just to see the consultant, that is not the chemo itself which takes at least 2 hours from what I have been given to understand. It also has to be prepared on site.


So Wednesday looks like this. 

Take Imogen to childminder, take Isaac to preschool, tell preschool that childminder is picking Isaac up. Drive to Guildford (again), see consultant, Hang around waiting for chemo. Have chemo, drive home, collect children collapse exhausted onto the sofa.



Before all of this though it is my birthday. Tony did have it booked off, but now with all of this I have to spend it without my husband. So we did what any normal family would do.


Spent this weekend on 3 different steam railways celebrating.


We started on Friday night on the Bluebell Railway fish and chip train. I love these as do the kids and so we had fish and chips on the steam train.


On Saturday we travelled slightly further East and went on the Spa Valley Railway from Groombridge to Tunbridge Wells, back to Eridge and finishing in Groombridge. I was ever so good. I love Tunbridge Wells' mix of shopping and so could spend hours browsing and spending, but I didn't :)


& today I forfeited the end of the Grand Prix to take the kids to Goffs Park to have a go on the Light Railway they have there.




And now I am doing admin. Not for me admittedly but Rainbow admin & NCT admin and blogging ;)


And now to bed!!