About this Blog

This blog started as an online diary and place for me to rant about annoyances in my family.

However since July it has become a place for me to catalogue and express my views and opinions on the treatment I have recieved following the diagnosis of a potentially cancerous tumor in my bowel.

On 3rd August 2011 I was told that it was cancerous. In April 2012 I was given the all clear.

October 15th 2013 I was diagnosed with peritoneal disease and liver metastases. The cancer was back and this time it is inoperable.

It is a little bit out of date as the NHS doesn't tend to have a WiFi connection in hospital and I can only post when I get home and posts take a while to write.

It is NOT about individuals or the nursing profession. It is about some of the inadequacies in the system and the way the NHS is failing some people.

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Monday, 11 November 2013

Back to reality with a bump.

My aim throughout all my diagnosis, treatment and complications is to keep things as normal as possible for the sake of my children. So today has been all about being normal.

Tony is working away this week, so my mum is staying again, but we still took Isaac to school this morning. It's funny in the playground. I stand and look at the mums, dads, carers and other people and wonder if they realise how lucky they are to know that they aren't living with the ticking time bomb inside of me. Most people have no idea about what I am living with. There are a few who do, but how do you introduce something like cancer, chemo and spending the weekend as an emergency admission in hospital into the conversation?

Simply speaking, you don't and you can't. So most of these people assume I spent the weekend with my family, doing normal things like shopping or having lunch out. 

So after dropping Isaac at school, we headed home to wave daddy off on his trip. But before that another unexpected turn up for the books. 

I am fast starting to recognise that community is not dead and this was proved as another local childminder who picks up and drops off at school and walks past my front door to do that came to offer here services if ever I needed help with Isaac. This was out of the blue, this was amazing and just reinforces the sense of community that exists when local people live, work and socialise locally. You know who you are, THANK YOU.

So, daddy has gone to work, and Imogen is a bit wriggley but she's 3 what do you expect?

Actually not the thing we are dealing with now. Turns out she has a UTI. After several visits to the loo and an unfortunate accident I call the GP and eventually fathom out that no, I can't just make an appointment for her today or tomorrow. I have to wait for a call back from the duty dr and maybe go to the other surgery. I have school runs and parent teacher meetings today so ask for a call back no earlier than 4. The DR calls my mobile and doesn't say anything, so I get home from picking Isaac up and find that the Dr has spoken to mum, confirmed a UTI and arranged a prescription for me to pick up from my surgery. Great, not quite as easy as that, the pharmacy near the GP & my local pharmacy don't have the antibiotic in stock, so a quick trip to Sainsbury's is in order for Imogen's new medicine. 

In and around that, there was the parent teacher consultation. I am so proud of how Isaac copes with everything he has had thrown at him in his short life and his is reflected in the comments his teacher gave me. She was positive and supportive and also told me how I can push him that little bit more.

So there is my normal day...

School run, UTI, parent teacher consultations. With a background of teething Hope and the one hiccup that occurred over the weekend a broken washing machine. Let's hope Imogen can find the potty in the night and we have enough disposable nappies to last until the machine is fixed.

Ohh, and the hospital manicure....ruined!!